My family and I call the East Coast our home. We live with my talented husband, who loves to play the guitar. We are a family of six, with our two youngest children filling our home with joy and laughter. Our two oldest children have embarked on their own adventures, leaving the nest to pursue their dreams.
Our family has a deep love for God. For over 12 years, I have dedicated myself to homeschooling my children. My interests include learning, drawing, reading, writing, and teaching. Writing, in particular, has always been a fervent passion of mine. I am currently engrossed in creating two novels, the fifth installment of the "Joey Saves the Day!" book series and other titles.
I have a lifelong aspiration to pen children's books, but I never felt confident enough to pursue this dream. However, in 2021, everything changed. I embarked on the journey of writing children's books because my son has dyslexia, which has caused him to learn at a slower pace compared to his peers. Witnessing his struggles with reading ignited a passion within me to create books that could have supported him during those challenging times. His journey to reading proficiency was arduous, beginning when he was just 4 years old and culminating when he reached the age of 10, finally achieving a second-grade reading level. Now, at fourteen, he reads at a seventh-grade level, a testament to his incredible determination and intelligence. While he still encounters occasional obstacles, his resilience inspires us all.
Just like my son and husband, I, too, have dyslexia. Additionally, I have Asperger's Syndrome, which makes socializing a challenge for me. Making and keeping friends is difficult, and I find comfort in following rules and routines. Honesty is important to me, so if you seek my opinion, I will provide it truthfully, even if it may be difficult to hear. I value sincerity and find it difficult to navigate a world where little lies are deemed acceptable. I am straightforward and prefer stability over change. Despite these challenges, I am a compassionate person with a deep love for collecting and reading books.
My husband was diagnosed with Acute Myeloid Leukemia.
Here is our story:
On one fateful Saturday, my husband thought he was bitten by a spider. Little did we know how quickly everything would change. What began as a minor concern turned into a life-altering moment when a coworker noticed a red line creeping up his arm. In that instant, our world was turned upside down as he rushed to the ER on October 22, 2024, uncertain of what lay ahead. Our journey into the unknown has been filled with fear, togetherness, and an unwavering love that grows stronger with each challenge we face.
All his bloodwork came back messy. They told him it was not a spider bite but perhaps cancer. He was referred to an oncologist. His appointment was on October 30. They took more blood and did a lot of blood tests. The tests came back a few days later, and he was told to go to University and was admitted on November 1. He had a bunch more tests, and on November 4, he had a bone marrow biopsy and was sent home. It felt like a really long time before we received the results. By November 8, he was readmitted to University Hospital, and treatment began for Acute Myeloid Leukemia.
He had 7+3 (induction chemo). His mutations are NPM1 and HDI/1. He was told he had a favorable outcome. He finished induction chemo on the 15th of November. He had another BMB on day 14. It showed increased blasts, but they said they were recovery cells. They repeated the BMB on December 4, and he was sent home to wait for the results. The results were much better this time. The blasts show 5-10% in hot spots. They will be doing another BMB soon. We have to visit the hospital twice a week for bloodwork, PICC line cover change, and also in case he needs a blood transfusion. Thank God he has not needed one yet. He had a few during his stay in the hospital. He had an allergic reaction to one of those transfusions. It was very scary.
He was our family's only source of income. All the bills and medical bills are mounting. I am unable to work because I have to be his caregiver. He is highly immunocompromised. His WBC is only at 1.0. We still have two kids at home in our care. I’m worried about our future. I’m concerned about how I will feed my family. I’m worried about not having gas to get my husband back and forth for his appointments. I'm scared we won’t be able to pay for his medications and other medical supplies. I’m so afraid of the unknown. I pray and pray. I cry and cry. I can’t eat, and I don’t sleep much. Please, God, heal my husband.
I do not like asking for help, but we really need it. I will definitely pay it forward in the future. My oldest daughter created this GoFundMe for us. We really appreciate everyone’s help, no matter how big or small. We welcome prayers most of all.💛
Visit this PAGE for updates on my husband's AML treatments and progress.
Mimi is the author of the "Joey Saves the Day!" book series and other titles. She loves learning, reading, drawing, and writing. She is a homeschooling mother of two children and has two adult children who have already left the nest.
I really love your books. They teach so much I have purchased them all. Keep up the writing. Never quit
ReplyDeleteThank you so much. I’m glad you like my books.
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